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Useful links...

Helpful organizations

Muscular Dystrophy UK
Muscular Dystrophy Support Centre
Action Duchenne
Duchenne UK
Pathfinders Neuromuscular Alliance
World Duchenne Organization

Special experiences and wishes

Muscle Dreams
The Wheely Boat Trust
Mariners of Bewl
Make a Wish
Dreams Come True
Rays of Sunshine
Variety Club
Caudwell Children
Willow Foundation

Holidays

Nancy Oldfield Trust

Other conditions associated with Duchenne

The National Autistic Society
National Network of Parent Carer Forums
ADHD

Equipment and assistance dogs

Boparan Charitable Trust
Canine Partners
Caudwell Children
Children Today
Dogs for Good
The Eileen McCallum Trust (Scotland)
Joseph Patrick Trust
Lifeline 4 Kids
Variety Club
Whizz-Kidz

Respite, hospices and help for carers

Hospice UK – you can search for a hospice throughout the UK
Together for Short Lives
Children’s Hospice Association Scotland CHAS
Carers Trust

Have we missed anything? If you’d like to recommend an organisation or resource, please let us know.

Contact Duchenne Family Support Group | 0800 121 4518 | info@dfsg.org.uk | 78 York Street, London W1H 1DP

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