Get involved...
There are lots of ways to support the work of the Duchenne Family Support Group. Whether you’d like to fundraise, take part in an event, support us financially, or simply spread the word, every contribution makes a real difference to the families we support.
We’re always grateful to those who choose to fundraise for DFSG. From sponsored challenges like the London Marathon to coffee mornings, quiz nights and community events, every effort makes a difference. We’re happy to offer ideas and support. Just get in touch to start fundraising with us.
You can support DFSG simply by shopping online. When you use Easyfundraising or Give as you Live, your favourite retailers donate to us every time you shop and at no extra cost to you. It’s an easy way to make a difference while doing what you already do.
Looking for an easy way to make a difference? By playing the Unity Lottery, you can support DFSG for just £1 a week. You’ll be entered into weekly draws with the chance to win up to £25,000, while helping families affected by Duchenne.
Every donation, big or small, helps us continue supporting families affected by Duchenne. You can make a one-off or regular donation, and every contribution goes directly towards our work.
Want to make a difference at a strategic level? We’re always keen to hear from people interested in becoming a trustee. You don’t need prior experience, just enthusiasm, commitment, and a desire to help guide the future of DFSG.
Dilip and Duchenne by Dave Langdale helps children and families understand Duchenne in an accessible way. For every copy sold, £1 is donated to DFSG, supporting our work while sharing an important story.
Meet our 2026 London marathon runners
The London Marathon is one of our biggest fundraising events, and in 2026, we were incredibly grateful to have four amazing people running in support of DFSG. Thanks to their dedication, vital funds will be raised to help us continue supporting around 800 families across the UK, a number that continues to grow each year. You can read about them and sponsor them here.
Caleb Cunningham
I’ve been living with Duchenne since I was born. My older brother, Noah, was diagnosed at three. Ever since, our family has faced some challenges. Charities like the DFSG have been incredibly helpful in supporting us through these difficulties. Now that my brother and I are older, we feel it’s our turn to give back and help a charity that has always been so kind to us, so they can assist more families like ours. My aim is to run all the major marathons for the charity, and this is the first step.
You can sponsor Caleb here: https://2026tcslondonmarathon.enthuse.com/pf/caleb-cunningham
Ed Bennett
In April 2026 I will be proudly representing the Duchenne Family Support Group, running the London Marathon. This is a charity that has become very important to me in the last year, since taking a job as a carer for someone who has the condition. From organising events and days out, to offering advice, the DFSG creates a safe space and community for those with the condition and for those around them.
Before this opportunity I have always pushed myself, with running, cycling, whatever would challenge me both mentally and physically, so this event has definitely been on my bucket list and to get the opportunity to support and raise money for such a worthy cause, and challenge myself at the same time, feels very special.
You can sponsor Ed here: https://2026tcslondonmarathon.enthuse.com/pf/ed-bennett
Louis Otto
Running has brought me a huge amount of joy. I’m a very athletic and physical person and I’ve always loved sport — particularly cycling and BMX — but running feels different. It’s such a universal sport.
My connection to the DFSG is deeply personal. A good friend of mine, Daniel, is living with Duchenne muscular dystrophy. Supporting the DFSG gives me, and my friend Ed (who is also running for the DFSG), a meaningful way to stand behind him and others with the same condition.
So far, I’ve completed two half marathons, one in Eastbourne and one in Cairo, but this will be my very first full marathon. That makes it particularly meaningful to me. To take on my first marathon while raising money for the DFSG, and for Daniel, feels like a powerful milestone.
You can sponsor Louis here: https://2026tcslondonmarathon.enthuse.com/pf/louis-otto
Diana Camacho
I would like to run marathon in support of the DFSG because my son, Sam (19) is also affected by DMD. Taking part in this challenge is my way of giving back to a charity that provide such a vital support to families like ours.
Living with Duchenne affects the whole family. It requires emotional strength, patience and constant learning. At times the journey can feel overwhelming, but the amazing support of the dedicated professionals, and communities like the DFSG, reminds us that we are not alone. Their guidance and resources have been invaluable in helping families like ours navigate this complex condition. I’m so excited for this opportunity and it feels even more special to be doing it in support of the charity that is so close to my heart.
You can sponsor Diana here: https://2026tcslondonmarathon.enthuse.com/pf/diana-camacho
Organise a day out for families
We love seeing families come together, and we actively encourage members to organise local days out in their area. Whether it’s a small meet-up or a bigger group activity, we’re happy to offer guidance, ideas and support to help make it happen.
If you’re thinking about organising a day out for families near you, please get in touch; we’d love to help.
You can also find some helpful tips and guidance to get you started here.
Write for our newsletter
Our families love hearing from one another, whether it’s a personal story, a shared experience, or something that simply brings a smile.
If you’d like to share a story, photo, article or update, our newsletter editor, Sue Berry, would be delighted to hear from you.
Families and professionals can also sign up to receive our newsletter and stay up to date with news, events and stories from across the DFSG community.
