Get involved...
There are lots of ways to support the work of the Duchenne Family Support Group. Whether you’d like to fundraise, take part in an event, support us financially, or simply spread the word, every contribution makes a real difference to the families we support.
We’re always grateful to those who choose to fundraise for DFSG. From sponsored challenges like the London Marathon to coffee mornings, quiz nights and community events, every effort makes a difference. We’re happy to offer ideas and support. Just get in touch to start fundraising with us.
You can support DFSG simply by shopping online. When you use Easyfundraising or Give as you Live, your favourite retailers donate to us every time you shop and at no extra cost to you. It’s an easy way to make a difference while doing what you already do.
Looking for an easy way to make a difference? By playing the Unity Lottery, you can support DFSG for just £1 a week. You’ll be entered into weekly draws with the chance to win up to £25,000, while helping families affected by Duchenne.
Every donation, big or small, helps us continue supporting families affected by Duchenne. You can make a one-off or regular donation, and every contribution goes directly towards our work.
Want to make a difference at a strategic level? We’re always keen to hear from people interested in becoming a trustee. You don’t need prior experience, just enthusiasm, commitment, and a desire to help guide the future of DFSG.
Dilip and Duchenne by Dave Langdale helps children and families understand Duchenne in an accessible way. For every copy sold, £1 is donated to DFSG, supporting our work while sharing an important story.
Organise A Day Out
Organise a day out in your area. It could be just a picnic in the local park!
Organise a day out for families
We love seeing families come together, and we actively encourage members to organise local days out in their area. Whether it’s a small meet-up or a bigger group activity, we’re happy to offer guidance, ideas and support to help make it happen.
If you’re thinking about organising a day out for families near you, please get in touch; we’d love to help.
You can also find some helpful tips and guidance to get you started here.
Write for our newsletter
Our families love hearing from one another, whether it’s a personal story, a shared experience, or something that simply brings a smile.
If you’d like to share a story, photo, article or update, our newsletter editor, Sue Berry, would be delighted to hear from you.
Families and professionals can also sign up to receive our newsletter and stay up to date with news, events and stories from across the DFSG community.
