Families Supporting Families

You are not alone. Whether you are dealing with a new diagnosis of Duchenne Muscular Dystrophy (DMD), or are further along in the journey, the Duchenne Family Support Group is here for you. Our helpline: 0800 121 4518

The DFSG is a UK national charity, run by families for families affected by DMD. We have been bringing people together for mutual support, information sharing and social activities since 1987.

All of our board of trustees and our Development Officer have experience of living with a family member with Duchenne.

The Summer Edition of the Duchenne News is out now! The newsletter is packed with articles, stories and information about Duchenne.

If you have a family member with Duchenne muscular dystrophy, or you are a care professional with an interest in the condition, and you would like to receive the newsletter regularly, please sign up here.

Membership of the Duchenne Family Support Group is free and without obligation.

Become a Trustee

The DFSG are currently seeking to recruit a general trustee to work with and to support our existing committee. If you would like to know more about this opportunity, please click here.

We are always very grateful to receive any donations. These can be either as a one-off or a regular standing order. Make a donation via PayPal.

You can donate or fundraise for DFSG Through Just Giving

Just giving Donate button

Fundraise for the Duchenne Family Support Group when you shop online

Fundraise for Duchenne Family Support Group when you shop online


The Weather Lottery

Join the Duchenne Family Support Group Weather Lottery and win up to £25,000!

Jeans for Genes day logo

We are pleased to announce that DFSG have received a small grant from Jeans for Genes of £2,500, which will fund our next newsletter and some core costs. These grants are vital to keep our work going, thank you Jeans for Genes.