Families Supporting Families

The DFSG is a UK national charity, run by families for families affected by DMD. We have been bringing people together for mutual support, information sharing, and social activities since 1987.

You are not alone. Whether you are dealing with a new diagnosis of Duchenne Muscular Dystrophy (DMD) or are further along in the journey, the Duchenne Family Support Group is here for you.

Our helpline: 0800 121 4518

The Winter Edition of the Duchenne News is out now!

If you have a family member with Duchenne muscular dystrophy, or you are a care professional with an interest in the condition, you can receive our quarterly newsletter for free. 

Membership of the Duchenne Family Support Group is free and without obligation.

A one-off donation can make a real difference. If you’re able to give, you can donate securely through PayPal, and we’re so grateful for your support.

Find out more about our 2025 London Marathon runners and how you can help.

You’re probably shopping online anyway…

With Easyfundraising, your usual shops will donate to DFSG each time you do and it doesn’t cost you a penny.        

Looking for an easy way to support us?

For just £1 a week, you can support our work and be in with a chance of winning up to £25,000.          

Thanks to a £2,500 grant from Jeans for Genes, we were able to fund an edition of our newsletter.

Support like this makes a real difference and helps us continue our work with families.