How to help

We are a very small charity and we always appreciate help from families, companies, health care professionals and others. Here are some examples of things you can do to help the DFSG:


We are always very grateful to people who nominate us as their chosen charity when taking part in any sporting event or challenge. One of our major sources of income is the London Marathon; if you would like to run for us please do get in touch. If you are a keen cyclist, we can also offer you a place in the Prudential RideLondon.

Weather lottery

Thank you to everyone that has joined the Duchenne Family Support Group Lottery so far; we’re overwhelmed by the support and love checking each week to see how many Duchenne Family Support Group winners there have been. For your chance to win an amazing £25,000 and to support the work of Duchenne Family Support Group at the same time – sign up today – each line costs just £1 each week!”

London Marathon

It’s all systems go (at the moment, anyway…) for the London Marathon to go ahead this October. This year will see the biggest number of participants ever because the organisers are holding a virtual Marathon alongside the actual Marathon. They are expecting 100,000 people to take part. This event is the DFSG’s biggest fundraiser and, along with many other charities, we really missed it last year. We hope to make up for lost ground, and more, this year. We still have places available in the virtual race. We will pay your entry fee, provide help with fundraising ideas and give you a running vest. If you have been feeling cooped up over the last few months this is a great opportunity to get outdoors, get fit and get raising much needed funds for the DFSG! 

For further information please contact  Ann Patterson on 07796 134159 or email:

If you prefer a less energetic approach, you can shop online via ‘Give as You Live’ or ‘Amazon Smile’ and the DFSG will receive a commission. If you would like to organise your own event, such as a quiz night, cake sale or coffee morning, please get in touch and we will be happy to support you.


We are always very grateful to receive any donations. These can be either as a one-off or a regular standing order. Make a donation via PayPal.

You can donate or fundraise for DFSG Through Just Giving

Just giving Donate button

Organise a day out for families

We actively encourage families to organise days out in their local area and we will give you all the help and support you need to do this.

If you are thinking about organising a day out for families in your area please do get in touch.

We have set out some tips for you here.

Write for the newsletter

Our families love to hear what others have been up to, whether your story is inspiring, helpful or will just raise a smile!

If you would like to share a story, photo, article or some information, our newsletter editor, Sue Berry, would love to hear from you.

Families and interested professionals can also sign up to receive our newsletter.

If you would like to know more about any of these options, or you have an idea of your own to help support the DFSG, please contact us.