How To Help

We are a very small charity and we always appreciate help from families, companies, health care professionals and others. Here are some examples of things you can do to help the DFSG:


We are always very grateful to people who nominate us as their chosen charity when taking part in any sporting event or challenge. One of our major sources of income is the London Marathon. If you would like to run for us, please do get in touch. If you are a keen cyclist, we can also offer you a place in the Prudential RideLondon.

Here are some fundraising tips for you.

Shopping and General Fundraising

Easyfundrasing website logo

If you prefer a less energetic approach, you can shop online via ‘Easyfundraising’ or ‘Give as You Live’ and the DFSG will receive a commission. If you would like to organise your own event, such as a quiz night, cake sale or coffee morning, please get in touch and we will be happy to support you.

Sponsor our 2023 London Marathon Runners

Please read about our runners and click the link to sponsor them.

I’d like to introduce the first of our wonderful London Marathon runners, Ellie Monk! Ellie, is from Chichester, in West Sussex, and works as a PA, for a young man with Duchenne and also has a friend with two brothers with Duchenne. When she found out about the amazing work of the DFSG, and that we had Marathon places available, she was very keen to raise money for us. Last year, Ellie ran the Brighton Marathon in 4 hours 2 minutes and her target for the London Marathon is to be under four hours.

Please sponsor her now by clicking this link:

Our next lovely Marathon runners come as a pair! Two friends from Warwickshire, Trudi Harries and Fiona Lapworth. Both ladies share a common friend, with a 19-year-old son with Duchenne, and they are very keen to support the work of the DFSG. Trudi, who is a Special Needs teacher, started running eight years ago and last year ran the Stratford Marathon with Fiona, a Medicines Technician. The ladies snack on jelly babies when they run and have been known to stop at a friend’s house, en route, for a wee! So if you know these ladies, and live in that part of London, please keep your door open!

You can sponsor these amazing ladies here:

This London Marathon runner is Teddy, who lives in Kentish Town and is a masters student at UCL studying Security Studies. He says he’s running for the DFSG as it’s a great cause and that he loves the atmosphere and positivity on the course. His third ever run was a marathon around Richmond Park. Then, in 2021, with very little running experience, Teddy ran the London Marathon for the DFSG. He’d like to beat his 2021 time of 3:30, but he’s just delighted to be running for us again!

Please click this link to sponsor Teddy:

Our final London Marathon runner is Richard, who lives in Littlehampton, in West Sussex. Richard works for Equiniti Limited as Managing Director of Corporate Advice. He has completed the Three Peaks challenge, cycled from Lands’ End to John O’Groats twice, the Trailwalker four times, the New York Marathon and the Brighton Marathon 3 times. When Richard heard about the possibility of running the London Marathon, for the DFSG, the charity seemed such a good cause he could not refuse. He has twice run a marathon in 3 hours 52, but the last time was 12 years ago. Richard, who is 50 in June, says his training suggests it may be possible to still get under 4 hours, so that is his target!

Please click this link to sponsor Richard:

Buy This Book

When a child has been diagnosed with Duchenne Muscular Dystrophy, it can be hard to know where to start with explaining the disease and why they might have it. That’s where Dave Langdale’s new book “Dilip and Duchenne” can help.

His book is now available on Amazon and Dave is kindly donating £1, from every sale, to the DFSG. Buy your copy today!

Weather Lottery

Thank you to everyone that has joined the Duchenne Family Support Group Lottery. We’re overwhelmed by all the support and love checking each week to see how many DFSG winners there have been.

For your chance to win an amazing £25,000 and to support the work of the DFSG at the same time – sign up today. Each line costs just £1 each week!


We are always very grateful to receive any donations. These can be either as a one-off payment or as a regular standing order. Make a donation via PayPal.

You can also donate or fundraise for the DFSG Through Just Giving.

Just giving Donate button

Organise a Day Out for Families.

We actively encourage families to organise days out in their local area and we will give you all the help and support you need to do this.

If you are thinking about organising a day out for families in your area please do get in touch.

We have set out some tips for you here.

Write for The Newsletter

Our families love to hear what others have been up to, whether your story is inspiring, helpful or will just raise a smile!

If you would like to share a story, photo, article or some information, our newsletter editor, Sue Berry, would love to hear from you.

Families and interested professionals can also sign up to receive our newsletter.

Become a Trustee

Looking for an opportunity to make a difference?

Have you ever thought of being a charity trustee?

The DFSG are currently seeking to recruit a general trustee to work with and to support our existing committee. If you would like to know more about this opportunity, please click here.

We look forward to hearing from you.

If you would like to know more about any of these options, or you have an idea of your own to help support the DFSG, please contact us.