How To Help

We are a very small charity and we always appreciate help from families, companies, health care professionals and others. Here are some examples of things you can do to help the DFSG:


We are always very grateful to people who nominate us as their chosen charity when taking part in any sporting event or challenge. One of our major sources of income is the London Marathon. If you would like to run for us, please do get in touch. If you are a keen cyclist, we can also offer you a place in the Prudential RideLondon.

Shopping and General Fundraising

If you prefer a less energetic approach, you can shop online via ‘Give as You Live’ or ‘Amazon Smile’ and the DFSG will receive a commission. If you would like to organise your own event, such as a quiz night, cake sale or coffee morning, please get in touch and we will be happy to support you.

Weather Lottery

Thank you to everyone that has joined the Duchenne Family Support Group Lottery. We’re overwhelmed by all the support and love checking each week to see how many DFSG winners there have been.

For your chance to win an amazing £25,000 and to support the work of the DFSG at the same time – sign up today. Each line costs just £1 each week!


We are always very grateful to receive any donations. These can be either as a one-off payment or as a regular standing order. Make a donation via PayPal.

You can also donate or fundraise for the DFSG Through Just Giving.

Just giving Donate button

Organise a Day Out for Families.

We actively encourage families to organise days out in their local area and we will give you all the help and support you need to do this.

If you are thinking about organising a day out for families in your area please do get in touch.

We have set out some tips for you here.

Write for The Newsletter

Our families love to hear what others have been up to, whether your story is inspiring, helpful or will just raise a smile!

If you would like to share a story, photo, article or some information, our newsletter editor, Sue Berry, would love to hear from you.

Families and interested professionals can also sign up to receive our newsletter.

Become a Trustee

Looking for an opportunity to make a difference?

Have you ever thought of being a charity trustee?

The DFSG are currently seeking to recruit a general trustee to work with and to support our existing committee. If you would like to know more about this opportunity, please click here.

We look forward to hearing from you.

If you would like to know more about any of these options, or you have an idea of your own to help support the DFSG, please contact us.