We are a very small charity and we always appreciate help from families, companies, health care professionals and others. Here are some examples of things you can do to help the DFSG:
Fundraise
We are always very grateful to people who nominate us as their chosen charity when taking part in any sporting event or challenge. One of our major sources of income is the London Marathon. If you would like to run for us, please do get in touch. If you are a keen cyclist, we can also offer you a place in the Prudential RideLondon.
Here are some fundraising tips for you.
Shopping and General Fundraising
If you prefer a less energetic approach, you can shop online via ‘Easyfundraising’ or ‘Give as You Live’ and the DFSG will receive a commission. If you would like to organise your own event, such as a quiz night, cake sale or coffee morning, please get in touch and we will be happy to support you.
2025 London Marathon Runners
The London Marathon is our biggest fundraiser and this year we were very lucky to have so many amazing people running to raise money for the DFSG! Read all about their amazing experiences below!
We rely heavily on the money raised to continue all the work that the DFSG does to support approximately 800 families across the UK. A figure that grows on a weekly basis.
Sam White
The event was incredible, huge numbers running and supporting. I expected it to open up as the race went on. However, it was packed from start to finish, and there wasn’t a gap in the walls of support that lined the streets. I was running well, up until around halfway, when the heat got the better of me and I started to cramp a little. Having the DSFG wristband on was a great reminder to keep pushing to the finish. I crossed the line in 3:24. An amazing memory and I am so happy that I was able to raise money for such a great cause.
Caleb Cunningham
The Marathon was a great experience which I would love to do again. As a runner I always have time goals I want to achieve. In this race, I did achieve my time goal but this time I’m not really fussed about it because of how really cool the experience was. There were points where my legs were cramping up and in lots of pain, but hearing all the crowd and remembering the cause I was running for, helped me keep going and finish the run.
Jordan Cox
Wow, what an experience the London Marathon was! It was just great to be among so many people challenging themselves to support charities they care deeply about. The crowds kept me going the whole way and although I didn’t get the time I had hoped for, I enjoyed every minute! When it got tough, I just remembered my WHY…for all the Wee Boys fighting DMD.
Billy Unwin
It was amazing. I had the best experience I have had in a very long time. The fundraising went well and I got to over the £2000 target. Once again thanks for giving me this experience.My son had an absolutely amazing time clapping all the runners on and seeing me struggling through.Thank you DFSG.
Chris Wright
What can I say about the London Marathon other than WOW!!
The crowd were simply amazing. Having only ever watched it on the TV, you only ever get to see key points like Cutty Sark and Tower Bridge but when I say the whole route was covered in people shouting, cheering, singing, playing music, holding signs and giving out sweets – I mean the whole 26.2 miles. It is simply the most epic experience I have ever gone through.
It’s safe to say I cried multiple times that day, a day I will never forget and I am very thankful for the DFSG for giving me the opportunity to run the marathon and tick it off my bucket list. I am delighted to have raised £2400 for the charity and I hope this helps continue the great work that the team do to support the families who need it.
Barni Sparkes
I was extremely nervous the morning of the marathon and I wanted to go out and do the best run I could for the DFSG. The crowd was absolutely amazing and even with the hot weather, helped me push through the tough times of the race and finish with a time I was really proud of.
I loved running for the DFSG and the thought of fundraising for such a good cause really helped me during the race and all of the training leading up to the race. Thank you!
Buy This Book
When a child has been diagnosed with Duchenne Muscular Dystrophy, it can be hard to know where to start with explaining the disease and why they might have it. That’s where Dave Langdale’s new book “Dilip and Duchenne” can help.
His book is now available on Amazon and Dave is kindly donating £1, from every sale, to the DFSG. Buy your copy today!
Weather Lottery
Thank you to everyone that has joined the Duchenne Family Support Group Lottery. We’re overwhelmed by all the support and love checking each week to see how many DFSG winners there have been.
For your chance to win an amazing £25,000 and to support the work of the DFSG at the same time – sign up today. Each line costs just £1 each week!
Donate
We are always very grateful to receive any donations. These can be either as a one-off payment or as a regular standing order. Make a donation via PayPal.
You can also donate or fundraise for the DFSG Through Just Giving.
Organise a Day Out for Families.
We actively encourage families to organise days out in their local area and we will give you all the help and support you need to do this.
If you are thinking about organising a day out for families in your area please do get in touch.
We have set out some tips for you here.
Write for The Newsletter
Our families love to hear what others have been up to, whether your story is inspiring, helpful or will just raise a smile!
If you would like to share a story, photo, article or some information, our newsletter editor, Sue Berry, would love to hear from you.
Families and interested professionals can also sign up to receive our newsletter.
Become a Trustee
Looking for an opportunity to make a difference?
Have you ever thought of being a charity trustee?
The DFSG are currently seeking to recruit a general trustee to work with and to support our existing committee. If you would like to know more about this opportunity, please click here.
We look forward to hearing from you.
If you would like to know more about any of these options, or you have an idea of your own to help support the DFSG, please contact us.