Helpful organisations

• Muscular Dystrophy UK
• Muscular Dystrophy Support Centre
• Action Duchenne
• Duchenne UK
• Pathfinders Neuromuscular Alliance
• World Duchenne Organization

Holidays

Nancy Oldfield Trust

Special experiences and wishes

• Muscle Dreams
• The Wheely Boat Trust
• Mariners of Bewl
• Make a Wish
• Dreams Come True
• Rays of Sunshine
• Variety Club
• Caudwell Children
• Willow Foundation

Other conditions associated with Duchenne

• The National Autistic Society
• National Network of Parent Carer Forums
• ADHD

Equipment and assistance dogs

• Boparan Charitable Trust
• Canine Partners
• Caudwell Children
• Children Today
• Dogs for Good
• The Eileen McCallum Trust (Scotland)
• Joseph Patrick Trust
• Lifeline 4 Kids
• Variety Club
• Whizz-Kidz

Respite, hospices and help for carers

• Hospice UK – you can search for a hospice throughout the UK
• Together for Short Lives
• Children’s Hospice Association Scotland CHAS
• Carers Trust

Have we missed anything? If you’d like to recommend an organisation or resource, please let us know.