Skip to content
Duchenne Family Support Group
Duchenne Family Support Group

Helpline: 0800 121 4518

  • Home
  • About Duchenne
    • About Duchenne Muscular Dystrophy
    • Inspiring Stories
  • About
    DFSG
    • What we do
    • Meet the team
    • Contact DFSG
  • Events and
    holidays
  • News and
    research
    • Latest News
    • Research
  • How to
    help
  • Helpful
    organisations

Helpful organisations

  • Muscular Dystrophy UK
  • Muscular Dystrophy Support Centre
  • Action Duchenne
  • Duchenne UK
  • Pathfinders Neuromuscular Alliance
  • World Duchenne Organization

Holidays

Nancy Oldfield Trust

Special experiences and wishes

  • Muscle Dreams
  • The Wheely Boat Trust
  • Mariners of Bewl
  • Make a Wish
  • Dreams Come True
  • Rays of Sunshine
  • Variety Club
  • Caudwell Children
  • Willow Foundation

Other conditions associated with Duchenne

  • The National Autistic Society
  • National Network of Parent Carer Forums
  • ADHD

Equipment and assistance dogs

  • Boparan Charitable Trust
  • Canine Partners
  • Caudwell Children
  • Children Today
  • Dogs for Good
  • The Eileen McCallum Trust (Scotland)
  • Joseph Patrick Trust
  • Lifeline 4 Kids
  • Variety Club
  • Whizz-Kidz

Respite, hospices and help for carers

  • Hospice UK – you can search for a hospice throughout the UK
  • Together for Short Lives
  • Children’s Hospice Association Scotland CHAS
  • Carers Trust

Have we missed anything? If you’d like to recommend an organisation or resource, please let us know.

Contact DFSG: 0800 121 4518, Info@dfsg.org.uk , 78 York Street, London W1H 1DP
Registered Charity No: 1128653 Copyright © 2025 Duchenne Family Support Group | Powered by Astra WordPress Theme
We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking “Accept”, you consent to the use of ALL the cookies.
Cookie settingsACCEPT
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Non-necessary
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
SAVE & ACCEPT