{"id":864,"date":"2021-01-21T16:59:39","date_gmt":"2021-01-21T16:59:39","guid":{"rendered":"https:\/\/dfsg.org.uk\/dev\/?page_id=864"},"modified":"2026-02-13T14:37:57","modified_gmt":"2026-02-13T14:37:57","slug":"meet-the-team","status":"publish","type":"page","link":"https:\/\/dfsg.org.uk\/dev\/meet-the-team\/","title":{"rendered":"Meet the Team"},"content":{"rendered":"\t\t
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Meet the team...<\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Stephen Meech<\/strong>
Chairperson<\/h4>\n

My family has been closely involved with the DFSG since my younger son Michael was diagnosed 32 years ago. I am the Chairperson of the DFSG Committee, look after the membership lists, and have liaised with MDUK<\/a>\u00a0over the years.<\/p>\n

I recently retired from being an NHS GP, and we live in rural Kent. Two of my children live in Australia, so we have to travel a lot!<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Sue Berry<\/strong>
Vice-Chairperson and Editor<\/h4>\n

I live in West Sussex. My son Matt, who had DMD, passed away at the age of 28 in December 2024.<\/p>\n

For many years, I was an English teacher in secondary schools and special schools. I first became involved in the Duchenne Family Support Group in 2001, when we attended the DFSG annual event at Bewl Water in Kent. I am currently the Editor of the Duchenne News, Vice-Chairperson of the DFSG Committee, and an event organiser.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Jacky Wilde<\/strong>
Committee Member<\/h4>\n

I\u2019ve recently become a committee member of the DFSG. I have a son called Zack, who is 21 and has DMD with a learning disability. I also have a daughter called Lauren, who is 19, and I have a younger son, Daniel, who is 10. I have a very supportive husband called Keith.<\/p>\n

I used to be a healthcare assistant at Southend Hospital. I\u2019m pleased to be on the committee and look forward to helping anyone who needs it.<\/p>\n

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Karen Lightly<\/strong>
Committee Member<\/h4>\n

I\u2019m Karen Lightly, and I live in Selsey, West Sussex.<\/p>\n

I am a single parent to triplets – 2 boys and 1 girl. Logan has DMD, my daughter Loxie is a carrier, and my other son, Jaxon, is unaffected. I also have an older son, Toby.<\/p>\n

I\u2019m very pleased to join the DFSG committee as I\u2019ve been really well supported by the charity and now feel I am in a position to give something back.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Sarah Wright<\/strong>\u00a0
Committee Member<\/h4>\n

I am Sarah Wright, and I live in St Leonard\u2019s on Sea, East Sussex.<\/p>\n

I am a single parent to two grown-up children. My son, who has DMD, is 29 years of age, and I have a daughter who is 27 and two granddaughters.<\/p>\n

For the last 7 years, I have worked part-time as a Clinical Secretary at my local hospital. I have been a member of the DFSG for about 21 years.<\/p>\n

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Amanda Revell<\/strong>
Trustee<\/h4>\n

I live in Essex with my husband, and I am Mum to Jonty, who was diagnosed with DMD in 2019 at the age of 4.<\/p>\n

Jonty has an older sister and a younger brother who, as is typical for siblings, show great kindness and thoughtfulness towards their brother.<\/p>\n

I work in London, on Trusts and Estates, and I love my job! I recently became a member of the DFSG committee, and I look forward to helping the charity with its plans and activities.<\/p>\n

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Kate Parker<\/strong>
Trustee<\/h4>\n

I live in Rye, East Sussex, with my 25 year old daughter and my son Daniel, who is 22.<\/p>\n

Daniel was diagnosed with DMD at the age of 5. He enjoys trips out with his carers and photography.<\/p>\n

I’ve been a member of the DFSG committee for a few years now and enjoy fundraising and meeting families on the days out and on the holidays.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Lizzie Senn<\/strong>
Fundraising Officer and London Marathon Coordinator<\/h4>\n\n

Hi, I\u2019m Lizzie, and I live in West Sussex.<\/p>\n

I work in Internal Communications and have always considered myself a digital storyteller.<\/p>\n

My best friend, Matt Berry, had DMD. We grew up together and shared so many laughs, adventures, and mischief. He passed away in December 2024, and being part of DFSG now is very special to me. What a wonderful way to honour his memory by helping other families feel the same sense of warmth and support that he gave so freely to others.<\/p>\n<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Laura Elliott<\/strong>
Minute Secretary<\/h4>\n

Hi, my name is Laura and I live on the south coast just outside of Brighton. I have 3 children, 2 of whom aged 18 and 23, have DMD. I joined the committee back in 2020 as their Secretary. I have recently taken on the role of organising the ladies weekend held once a year for some of our lovely mums!<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Janet Bland<\/strong>
Treasurer<\/h4>\n

I live in West Sussex, close to the beach, which I love. I have three adult children, and four small granddaughters, who keep me busy now that I have retired from school work.<\/p>\n

I met Sue Berry over 20 years ago, while working with her son Andrew at primary school. Sue and I became firm friends, supporting each other through many of life\u2019s challenges. During this time, I got to know Sue\u2019s son, Matt, and learnt about the DFSG and the great work they do. <\/p>

I am very pleased to be included in the team as their new Treasurer.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Meet the team… Stephen MeechChairperson My family has been closely involved with the DFSG since my younger son Michael was diagnosed 32 years ago. I am the Chairperson of the DFSG Committee, look after the membership lists, and have liaised with MDUK\u00a0over the years. I recently retired from being an NHS GP, and we live […]<\/p>\n","protected":false},"author":9,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"default","site-content-layout":"plain-container","ast-site-content-layout":"normal-width-container","site-content-style":"unboxed","site-sidebar-style":"unboxed","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ngg_post_thumbnail":0,"footnotes":""},"class_list":["post-864","page","type-page","status-publish","hentry"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/dfsg.org.uk\/dev\/wp-json\/wp\/v2\/pages\/864","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dfsg.org.uk\/dev\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/dfsg.org.uk\/dev\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/dfsg.org.uk\/dev\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/dfsg.org.uk\/dev\/wp-json\/wp\/v2\/comments?post=864"}],"version-history":[{"count":144,"href":"https:\/\/dfsg.org.uk\/dev\/wp-json\/wp\/v2\/pages\/864\/revisions"}],"predecessor-version":[{"id":3629,"href":"https:\/\/dfsg.org.uk\/dev\/wp-json\/wp\/v2\/pages\/864\/revisions\/3629"}],"wp:attachment":[{"href":"https:\/\/dfsg.org.uk\/dev\/wp-json\/wp\/v2\/media?parent=864"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}