Thoughts and News from the Development Officer

News from the Development OfficerNews and Thoughts from the Development Officer

My name is Phillippa Farrant and I am the Development Officer for DFSG. This is a page where I can post my thoughts and ramblings- as I am representing the charity in lots of areas I felt it was a good idea to have somewhere quick and easy to keep families updated on what I was doing on their behalf as well as updating any relevant research news, meetings attended and random items that I think will be of interest to you all.

They are my thoughts and not necessarily the views of the charity.

Mar
03
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Just thought I would update you with a few details of the charity and what I have been up to on your behalf... As many of you are aware DFSG is struggling a bit financially but members have rallied and we have had some lovely donations of money and organi…
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Sep
05
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A new area for the website launched today.... On Tuesday I was in Westminster at the launch of the All Party Parliamentary Group (APPG) report into access to drugs for rare diseases.. On Saturday we will be sailing at Bewl Water for the day, come and joi…
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