How To Help

We are a very small charity and we always appreciate help from families, companies, health care professionals and others. Here are some examples of things you can do to help the DFSG:


We are always very grateful to people who nominate us as their chosen charity when taking part in any sporting event or challenge. One of our major sources of income is the London Marathon. If you would like to run for us, please do get in touch. If you are a keen cyclist, we can also offer you a place in the Prudential RideLondon.

Here are some fundraising tips for you.

Shopping and General Fundraising

Easyfundrasing website logo

If you prefer a less energetic approach, you can shop online via ‘Easyfundraising’ or ‘Give as You Live’ and the DFSG will receive a commission. If you would like to organise your own event, such as a quiz night, cake sale or coffee morning, please get in touch and we will be happy to support you.

Sponsor our 2024 London Marathon Runners

The London Marathon is our biggest fundraiser and this year we are very lucky to have nine amazing people running to raise money for the DFSG!

We rely heavily on the money raised to continue all the work that the DFSG does to support approximately 750 families across the UK. A figure that grows on a weekly basis. Please sponsor our wonderful runners!

MATT GIFFORD: I’m 53 and live in Bedfordshire with my wife Nikki. I am a dad of four grown up children and became a Grandad last year. I was looking for a DMD related charity and this is when I came across the DFSG. I have been a runner for 25 years, but last year was my first ever marathon.

Please sponsor Matt now by clicking this link:

JESS DOVE and JACK FLECKNEY: My fiancé Jack and I live in a small village called Isham, in Northamptonshire. We wanted to run the marathon for DFSG as we have seen first hand how DMD can affect a family, having grown very close to Albert Richardson and his wonderful parents Sonia and Dougie. Last year I ruptured my Achilles tendon and being able to complete the London Marathon will be a mammoth task for me with this injury – but it’s nothing compared to what many young boys with DMD go through every single day, so I am grateful for the opportunity to challenge myself and run for those who can’t. We will both give it our best!

To sponsor Jess and Jack click here:

BEN PEARSON and NATHAN NOTTAGE: We both live in Watford, Hertfordshire and have been friends for over 20 years. The DFSG is a charity close to our hearts as Ben’s big brother, Stevie, has Duchenne muscular dystrophy. We have lots planned for our fundraising including a music night and a boxing match! Neither of us have ever ran a marathon before! We are training very hard, and looking forward to doing our bit to raise as much as we can. Thanks for having us onboard, we are very proud to be doing it for the DFSG.

Please click their link to sponsor Ben or Nathan :

LOUISE CROW ARNOLD: I am excited to be able to participate in the London Marathon for the DFSG and raise money for them. Last October we were fortunate to be on the receiving end of their support when we enjoyed a wonderful family holiday in Cornwall. I live in Hampshire with my husband and three sons. My youngest, Leon (13), lives with DMD. When not out running, I enjoy yoga and walking.

Please click this link to sponsor Louise:

RACHEL SHARP and JAMES PHILO: James and I live in Northamptonshire and we are both running our first marathon (and possibly my last!) for the DFSG. It has always been James’ dream to complete a marathon and I got swept up with the excitement of it! My close friend, Julie Embleton, has twin boys, one of who, Ollie, has DMD which gave us the connection and inspiration to run for such a worthwhile cause. I admire Julie and how she copes with day-to-day life and wanted to show my support to her and other families living with Duchenne. Training for the marathon has been tough but will hopefully pay off on the day. 

Please click this link to sponsor Rachel and James:

ALYSOUN STURT- SCOBIE: It’s my 6×10 big birthday soon and it seemed appropriate and fitting to join the DFSG’s fundraising campaign, in fond memory of Christopher, the son of Nick Shaw, who is my husband’s oldest school- friend. I live in France and I’ve never run a marathon but I’ve completed a few sprint triathlons in my forties and four amateur stages of the Tour de France. I’ve been working overseas for a few years, most recently for the Red Cross. It’s an absolute privilege to be able to run for the DFSG, thanks to all of you for this opportunity.

Please click this link to sponsor Alysoun:

Buy This Book

When a child has been diagnosed with Duchenne Muscular Dystrophy, it can be hard to know where to start with explaining the disease and why they might have it. That’s where Dave Langdale’s new book “Dilip and Duchenne” can help.

His book is now available on Amazon and Dave is kindly donating £1, from every sale, to the DFSG. Buy your copy today!

Weather Lottery

Thank you to everyone that has joined the Duchenne Family Support Group Lottery. We’re overwhelmed by all the support and love checking each week to see how many DFSG winners there have been.

For your chance to win an amazing £25,000 and to support the work of the DFSG at the same time – sign up today. Each line costs just £1 each week!


We are always very grateful to receive any donations. These can be either as a one-off payment or as a regular standing order. Make a donation via PayPal.

You can also donate or fundraise for the DFSG Through Just Giving.

Just giving Donate button

Organise a Day Out for Families.

We actively encourage families to organise days out in their local area and we will give you all the help and support you need to do this.

If you are thinking about organising a day out for families in your area please do get in touch.

We have set out some tips for you here.

Write for The Newsletter

Our families love to hear what others have been up to, whether your story is inspiring, helpful or will just raise a smile!

If you would like to share a story, photo, article or some information, our newsletter editor, Sue Berry, would love to hear from you.

Families and interested professionals can also sign up to receive our newsletter.

Become a Trustee

Looking for an opportunity to make a difference?

Have you ever thought of being a charity trustee?

The DFSG are currently seeking to recruit a general trustee to work with and to support our existing committee. If you would like to know more about this opportunity, please click here.

We look forward to hearing from you.

If you would like to know more about any of these options, or you have an idea of your own to help support the DFSG, please contact us.