We are a very small charity and we always appreciate help from families, companies, health care professionals and others. Here are some examples of things you can do to help the DFSG:
Fundraise
We are always very grateful to people who nominate us as their chosen charity when taking part in any sporting event or challenge. One of our major sources of income is the London Marathon. If you would like to run for us, please do get in touch. If you are a keen cyclist, we can also offer you a place in the Prudential RideLondon.
Here are some fundraising tips for you.
Shopping and General Fundraising
If you prefer a less energetic approach, you can shop online via ‘Easyfundraising’ or ‘Give as You Live’ and the DFSG will receive a commission. If you would like to organise your own event, such as a quiz night, cake sale or coffee morning, please get in touch and we will be happy to support you.
Sponsor our 2025 London Marathon Runners
The London Marathon is our biggest fundraiser and this year we are very lucky to have so many amazing people running to raise money for the DFSG!
We rely heavily on the money raised to continue all the work that the DFSG does to support approximately 750 families across the UK. A figure that grows on a weekly basis. Please sponsor our wonderful runners!
Sam White
I’m 31 years old and live in Northamptonshire with my wife, our two children (aged 4 and 2), and our cocker spaniel. From the age of 18, I spent 11 years in the British Army. After transitioning out of the military, I pursued a career in IT and co-founded Legend Expeditions.
In my spare time, I like to keep fit by weightlifting, running, and cycling.
I have chosen to run for the Duchenne Family Support Group (DFSG) as I’ve seen the extremely tough and life-changing challenges that families face when affected by DMD. I would love to raise as much money as possible to alleviate, in some way, the hardship that these families are experiencing.
Please sponsor me by following this link:
Caleb Cunningham
I’ve decided to run the London Marathon 2025 for Duchenne Family Support Group.
I have 3 older brothers, one of my brothers, Noah, has Duchenne Muscular Dystrophy, and family life has always been challenging when finding social events to attend.
DFSG organise support and trips and holidays that are inclusive for the whole family to make memories and enjoy time together with no barriers.
Charities that support Duchenne are important to me as the disease has had such an impact on mine, and my families, lives, that I’d like to give something back.
Please sponsor me by following this link:
https://www.justgiving.com/page/caleb-cunningham-1718657688405
Jordan Cox
I am a 34 year old wife, mother of 2, and I work full time as a Senior Charge Nurse at an NHS Hospital.
The man in the photo with me is Jamie. My husband’s best friend since they were 3 years old. In March 2022 Jamie’s Son, ‘Wee Jamie’, was diagnosed with DMD.
His parents work tirelessly to secure the best treatment, and hopefully a cure, for this devastating condition. They have taken ‘Wee Jamie’ across the world for treatment, whilst still trying to give him a wonderful childhood. Their grit and determination inspired me to take on the challenge of the London Marathon and I knew it could only be the DFSG that I would want to support. I am by no means a runner, so this feels like a huge challenge, but I will do whatever it takes to help families living with this condition.
It is so wonderful to know that the DFSG is there to support families like them. We are all in this fight together.
Please sponsor me by following this link:
Billy Unwin
I have decided to run the London Marathon this year to raise awareness of Duchenne Muscular Dystrophy whilst raising funds for The Duchenne Family Support Group.
The DFSG does incredible work supporting families who have been affected by Duchenne. It’s a charity run by families for families, and it holds a special place in my heart as my youngest Son, Dexter, has recently received this earth shattering diagnosis.
I am training hard, with the goal of completing in sub 3 hours, but it’s made a little easier knowing that I am raising awareness for Duchenne and that the money raised will help families like my own to navigate through this diagnosis and provide the support they need at a very difficult time.
Please sponsor me by following this link:
Chris Wright
I have chosen to run for the Duchenne Family Support Group after being contacted by Jack Fleckney. Jack had made me aware that a space had come free and, after speaking with him, I was delighted to support this great cause. I have watched the work Jack has done with the charity and it clearly provides some amazing experiences for the families affected by Duchenne Muscular dystrophy. I am delighted to use this charity space to create awareness and help raise the much needed funds to support the great work the DFSG does.
Please sponsor me by following this link:
https://2025tcslondonmarathon.enthuse.com/pf/chris-wright-1d3f5
Barni Sparkes
I have been a keen runner for a fair few years and am privileged to run the London Marathon on behalf of the Duchenne Family Support Group. My very first exposure to Duchenne Muscular Dystrophy was my sister becoming close friends with a patient who had DMD. Through her I was lucky enough to meet him, and discover what a amazing person he and his family are. Through this friendship I supported the charity by attending fundraising events and continued to learn and appreciate the community. I’m honoured to run for this incredible charity and support everyone involved.
Please sponsor me by following this link:
Buy This Book
When a child has been diagnosed with Duchenne Muscular Dystrophy, it can be hard to know where to start with explaining the disease and why they might have it. That’s where Dave Langdale’s new book “Dilip and Duchenne” can help.
His book is now available on Amazon and Dave is kindly donating £1, from every sale, to the DFSG. Buy your copy today!
Weather Lottery
Thank you to everyone that has joined the Duchenne Family Support Group Lottery. We’re overwhelmed by all the support and love checking each week to see how many DFSG winners there have been.
For your chance to win an amazing £25,000 and to support the work of the DFSG at the same time – sign up today. Each line costs just £1 each week!
Donate
We are always very grateful to receive any donations. These can be either as a one-off payment or as a regular standing order. Make a donation via PayPal.
You can also donate or fundraise for the DFSG Through Just Giving.
Organise a Day Out for Families.
We actively encourage families to organise days out in their local area and we will give you all the help and support you need to do this.
If you are thinking about organising a day out for families in your area please do get in touch.
We have set out some tips for you here.
Write for The Newsletter
Our families love to hear what others have been up to, whether your story is inspiring, helpful or will just raise a smile!
If you would like to share a story, photo, article or some information, our newsletter editor, Sue Berry, would love to hear from you.
Families and interested professionals can also sign up to receive our newsletter.
Become a Trustee
Looking for an opportunity to make a difference?
Have you ever thought of being a charity trustee?
The DFSG are currently seeking to recruit a general trustee to work with and to support our existing committee. If you would like to know more about this opportunity, please click here.
We look forward to hearing from you.
If you would like to know more about any of these options, or you have an idea of your own to help support the DFSG, please contact us.