BBC Interview with Phillippa Farrant and Daniel Warren
Location: BBC studios and Eastbourne
24th August 2009
Introduction
An interview to talk about the findings of the Walton Report which was launched in London. The report highlights the lack of services for people with neuromuscular conditions and the patchy quality of care around the country.
Walton Report confirms ‘postcode lottery’ to life expectancy for patients living with muscular dystrophy
I have been working with the All Party Political Group and Muscular Dystrophy Campaign looking at the postcode lottery of services for those with neuromuscular conditions. This has resulted in the Walton Report being produced which shows the recommendations needed for the NHS, along with asking for these conditions to be recognised on the specialised commissioning framework so that more services can be put in place. My role was as an ‘expert’ with my experiences with Daniel and I was therefore able to talk to Parliamentarians and commissioners about life at grass roots level. As I am quoted in the report when the media saw the report they decide to use me as an illustration of what the report was about. Dan and I were interviewed at home and I was also called into the BBC News 24 studios to be interviewed live.
A Video interview on BBC website (opens in new browser window)
Further reading.
http://www.muscular-dystrophy.org/get_involved/campaigns/
http://www.actionduchenne.org/viewarticle?news=25
http://www.politics.co.uk/news/health/nhs-accused-of-muscular-dystrophy-neglect-$1320793.htm
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