Duchenne muscular dystrophy is a devastating disease which affects approximately 250.000 children around the world. The vast majority of Duchenne patients are boys and young men who progressively lose their physical functions before they inevitably die of this cruel disease. Read More...
The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD).
The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals.
The DFSG helps bring families together for mutual support, sharing of information and experience, and social activities and has been doing so since 1987.
Holidays and Special Events
Our annual sailing day, picnic, barbecue and an accessible boat courtesy of the Mariners of Bewl
Join us for a great accessible day out at the National Motor Museum, Beaulieu, Hampshire - bring a picnic!
Eight families are off to Le Fosso, near the city of Rennes in Brittany to enjoy a few days of relaxation and activities during the half term week in May
We are planning to hold the next Remembrance Weekend in Lincoln on 2nd & 3rd August 2014 If you are interested in joining us for this weekend please contact us on 0800 121 4518 - firstname.lastname@example.org
Recent News, Articles and Conferences
Duchenne muscular dystrophy is a devastating disease which affects approximately 250.000 children around the world. The vast majority of Duchenne patients are boys and young men who progressively lose their physical functions before they inevitably die of this cruel disease. Raising Awareness about the disease is key. You can help us raise awareness in any means possible. Please watch and share the video, help us to make sure as many people as possible will understand we all need to do something!
The SKIP-NMD research project started in November 2012 with the award of an EU grant. The project brought together a consortium of researchers, clinicians and companies from across the field to develop and test a new molecular patch for exon 53 of the dystrophin gene. More...
Interested in a free holiday for all the family? TV production company TwoFour, makers of Educating Yorkshire and The Hotel Inspector are looking to take families to a beautiful Villa for a new and exciting show in the sun! APPLY NOW - email@example.com.
MDC National Conference, Saturday 18 October at the Hilton Hotel in Coventry
The UK Duchenne Muscular Dystrophy Registry was established by Action Duchenne Ltd (formerly Parent Project UK Ltd) with a Registry Manager appointed and administered by a Curator.